Loeys-Dietz Designs~~~~Items Customizable By You!

The Loeys-Dietz Syndrome Foundation (LDSF) is a 501(c)3 non-profit organization based in Baltimore, Maryland. The Foundation is dedicated to: · encouraging education about Loeys-Dietz syndrome (LDS) and related connective tissue disorders to medical professionals and lay communities in order to aid in identification, diagnosis, and treatment · fostering research about LDS · providing a support network for individuals, parents, and families affected by LDS. · Our purpose is to provide information about what Loeys-Dietz syndrome is and to provide hope for those impacted by the condition. We hope that through our website, newsletter, social media outlets and other resources, you will find medical information and personal support to assist you and your family on your journey with LDS. We strive to serve a growing global community of individuals impacted by LDS. Loeys-Dietz syndrome (LDS) is a genetic disorder that affects the connective tissue in the body. The disorder was first observed and described by Dr. Bart Loeys and Dr. Hal Dietz at the Johns Hopkins University School of Medicine in 2005. Individuals with LDS exhibit a variety of medical features in the cardiovascular, musculoskeletal, skin and gastrointestinal systems. Information about the natural history and management of individuals with LDS continues to evolve. LDS manifests itself in a number of ways; therefore, no two persons with LDS will have identical medical characteristics. It is recommended that you consult your physician or a local geneticist if you have questions about individual health concerns. Please go to www.loeysdietz.org<http://www.loeysdietz.org> for additional information and resources. (Please note....items from this store are customizable. You are able to change color and even change the style of most products. Check back often because new items will be added. Happy shopping and THANK YOU for supporting LDS Awareness)